The trick in life isn't getting what you want, it's wanting it after you get it।
Well Sept. is almost over & Tyler is doing remarkably well with his peg tube, we will go into the hospital again with in the next month or 2 & have a Mic Key button placed in. Which is going to be a lot better for many things & I won't go into all the messy details on the PEG tube.
Tyler & Cory had a nice, happy & peaceful birthday. Tyler had NO seizures on his birthday & we actually went 6 days w/o : ) He has had some very mild ones only lasting 10 seconds or less, however, we'll go several or 6 days with out & he's been off the last mono therapy AED last week.
We will continue to keep him off those meds & plan to do more Cranio-Sacral therapy which I've paid for a class to learn & kinda try to practice now & we will continue to do acupressure massages, hopefully daily if I find time, micro current therapy ( like a tens machine, but more detailed & programmable to meet individuals needs) we also will keep doing acupuncture @ least once a month, Tyler loves it!
We also have been enjoying moxa/moxi combustion sticks for therapy enabling the GI tract & immune system to function as normally as possible without giving to much western medicine.
I am really liking the journey that has led me to find a balance of Eastern & Western medicine~I am still fine tuning & somewhere in all this we still have to be just parents.
Tyler is an extraordinary human being, who will lead not only those with Non Ketotic Hypergylicemia NKH) / Glycine Encephalopathy http://www.geneclinics.org/profiles/nkh/index.html
or special needs, but everyone who has been involved with all kinds of people to become braver, stronger, beat the odds, humble, happy & everything good.
He makes me want to be a better person, & teaches me to do the right thing even if I am the only one ( besides him) who agrees.
My job is to do what is best for him & anymore I just operate on intuition. He is my life & I will do what I would want care givers to do for me if I were in the same situation.
We have come a long way, but lots more to go...
About Us
- THE CLAUSENS
- Cory & Kathryn met in in the summer of 2004 & married in 2005, Kathryn was pregnant with TYLER our Pride & Joy. We are the 3 musketeers & love traveling, mainly road trips to go camping,but we have gone on a planes too. I get the luxury of staying @ home to care for our boy & Cory works for Trader Joe's, as a manager he has to go all over the place, he is currently @ the Roseville store. Tyler will turn 3 in September. We have 2 cats & 1 dog. Our interests are diverse.
Tuesday, September 25, 2007
Thursday, September 13, 2007
Right On! Tyler turned 2 on Wednesday & we had a follow up with the GI Dr. & everything looks good :-)
Hopefully we can do some swimming in Great Gram heated pool in Livermore soon.
Tyler had a happy birthday & we plan on a short camping trip again within the next few weeks for a couple of days.
Cory & I are very lucky that our little man is so adaptable! He's getting his appetite back, eating a lot more @ a time & he's drinking from his sippy cups.
Hopefully we can do some swimming in Great Gram heated pool in Livermore soon.
Tyler had a happy birthday & we plan on a short camping trip again within the next few weeks for a couple of days.
Cory & I are very lucky that our little man is so adaptable! He's getting his appetite back, eating a lot more @ a time & he's drinking from his sippy cups.
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