YOUR 2 CENTS OR MORE

The trick in life isn't getting what you want, it's wanting it after you get it.
Support the NKH International Family Network

In order to continue moving the NKH International Family Network forward, it is important that we raise funds to support our needs. If you or your relatives would like to donate some money - or even a gift card to an office supply store - you are more than welcome.

Perhaps you want to follow Karens example: She and her husband did a big party for Jennifer's 16th Birthday and the invitation read: in lieu of gifts, Jennifer asks that you make a donation to the NKH Family Network.

Checks and money orders can be made payable to:		NKH International Family Network c/o Judy Clifford 481 Canisteo St. Hornell, NY 14843 Please remember: All checks have to be made out to "International NKH Family Network" or Judy Clifford. Donations do NOT have to be in US funds only.

You also can support research on NKH

Read what Prof. Johan Van Hove wrote:

Since arriving in Denver in July 2003, the NKH laboratory has developed the analysis of the genes associated with NKH to be used for diagnosis. In addition to helping patients with the diagnosis, we hope these tests will also become useful in hopefully predicting the severity of the disorder in individual patients. This is essential for future clinical trials of new treatment options. Currently, our laboratory does not have separate funding for more involved testing. However, frequently these tests show that the patient has a new and not yet described genetic change (possible DNA mutation).
We are trying to develop ways in which we can identify what this genetic change means: whether it involves a new disease-causing genetic change or whether it is an innocent variant. Also, we would like to develop a mouse that has the NKH disease. This will give us a first tool to try out new treatment options prior to having to treat children.
We can accept your support for these scientific endeavours through the University of Colorado Foundation.

Checks can be made out to the CU Foundation with the mention 02-21975 Nonketotic hyperglycinemia fund, and sent to our administrative assistant:

Carrie John
UCHSC at Fitzsimons
Department of Pediatrics
Mail Stop 8313 PO Box 6511
Aurora, CO 80045.

Johan Van Hove, MD, PhD and Gunter Scharer, MD